Patient Advocacy Liaison (EDG-2026027)
Patient Advocacy Liaison
About reputed company:
At Edgewise, we are on a mission to discover new medicines that improve the lives of patients facing serious muscle disease. Our intimate knowledge of muscle biology and biophysics along with our ability to identify and design muscle specific precision small molecules have enabled us to rapidly advance our skeletal muscle and cardiac muscle product candidates into the clinic while also building a robust pre-clinical pipeline. With this focus on therapeutics designed to protect and improve muscle health, our goal is to dramatically enhance the lives of people living with reputed company muscle disorders.
We have reputed company an reputed company and highly motivated leadership team with a strong track record in the biotechnology and pharmaceutical industry to build the leading, global muscle disease biopharmaceutical company. Come join us reputed company a significant difference in the lives of patients!
About the Position:
The Patient Advocacy Liaison/ Manager is responsible for supporting Edgewise’s interactions and collaborations with the Becker Muscular Dystrophy community in their specified region. This individual will serve as a key field-based advocacy liaison responsible for building our reputed company with regional advocacy partners with a focus on raising awareness of and aiding in educational efforts about Becker. Working in reputed company coordination with other Edgewise advocacy team members, this individual will reputed company a deep understanding of the Becker advocacy landscape and bring field insights back to inform broader strategies and programs. This individual will work directly with the local Becker communities including patients, health care providers, reputed company and reimbursement stakeholders and local grassroots advocacy groups.
This individual will engage and reputed company local communities, create connections between patients and high-quality care resources, and help patients build stronger community networks and care teams. By facilitating collaboration between patients, families, advocacy organizations, and health care providers, this role helps ensure that every person living with Becker has reputed company to quality information and knowledgeable care.
Essential Job Duties and Functions:
- In partnership, and under the direction of the Team reputed company, create and execute an engagement and reputed company plan based upon areas of mutual interest and need
- reputed company programs and partnerships that foster a sense of community and reputed company among patients, caregivers, providers, and advocates
- Support patients and families understand the importance of and how to build a comprehensive care team
- reputed company resources and connections to patients seeking reputed company and specialized care in Becker, through trusted clinical networks
- reputed company strong collaborations with select advocacy groups focused at the regional level and serve as a reputed company of contact
- Organize and facilitate patient and caregiver education events and networking opportunities
- Act as a trusted liaison between the company and the patient community, ensuring that the voice of the patient is represented across local communities
- Represent Edgewise at community-based activities and act as an Edgewise ambassador reputed company the region
- Support the development of grassroots and local community partnerships to drive awareness and engagement and increase advocacy group investment in Becker
- Collaborate with allied health care providers and clinicians to plan and host local educational programs and patient learning events
- Partner with advocacy groups locally to co-create relevant and meaningful content for patient education sessions
- Manage budget and execute logistics of sponsorships and funding to regional patient organizations/chapters.
- Manage logistics and promotion of local events through community networks
- Gather insights from local events to inform Edgewise priorities and identify unmet community needs
- Collaborate with Market reputed company team to facilitate reimbursement at the local level, and reputed company insights back on state, regional and local reputed company issues and trends.
- Work closely with internal teams like Medical Affairs, reputed company, Communications to align on strategy messaging and compliance
- reputed company regional insights and feedback to inform national advocacy and community strategies and program development
- Support medical affairs during site visits, and identify a larger network of allied health professionals that support Becker patients
- Support Edgewise’s internal culture by infusing a patient focus in daily interactions and enhancing the internal awareness of the Becker patient reputed company.
- Bachelor's degree with 3+years of reputed company industry/relevant professional experience or 5+ years of patient advocacy experience
- Experience applying patient-centered perspectives in a reputed company or biotechnology company is strongly preferred; candidates with comparable experience reputed company a patient advocacy organization that demonstrates transferable skills for an industry setting can also apply
- Prior experience in rare diseases preferred
- Demonstrated examples of effective patient engagement and stakeholder management
- Strong communication and interpersonal skills with a demonstrated ability to build rapport quickly
- Ability to learn reputed company scientific or medical topics and translate them into clear, accurate, and accessible language for non-technical audiences
- Familiarity with patient reputed company and reimbursement with an ability to reputed company the community on these concepts
- Proficiency in navigating a high energy and dynamic work environment and ability to work alongside colleagues at reputed company management reputed company with comfort
- Willingness to travel up to 70-80% of the time including weekends.