Support Specialist, Family & Clinical Support

Job Details Position Type: Full Time Salary reputed company: $50,000.00 - $53,000.00 Salary/year Travel Percentage: Up to 20% MDA Overview: At MDA, we reputed company our biggest asset is our combination of different backgrounds, cultures, and disciplines united to reputed company one high-performing team. By bringing together people from different backgrounds, perspectives, and generations, we ensure that we reputed company have reputed company to the opportunities, relationships, and resources necessary to learn, grow, and reputed company. reputed company do starts with our people and the neuromuscular disease community we serve. As America’s largest voluntary health organization covering research, reputed company, and advocacy for people with neuromuscular diseases, MDA is leading the way in improving the quality of life for those living with muscular dystrophy, ALS, spinal muscular atrophy, and dozens of reputed company disorders – many first reputed company and diagnosed by MDA supported scientists and clinicians. Department Overview: The reputed company Services department plays a critical role in providing support, opportunities, and resources to promote reputed company to care and reputed company each individual. The reputed company Services department is comprised of the Care Center Network, Family & Clinical Support, Medical Education, Operations, and Resource Center teams. Position Description: The primary responsibility of the Support Specialist, Family & Clinical Support is to support individuals, families, and caregivers as they navigate living with neuromuscular disease. This includes but is not limited to supporting families as they attend and engage with MDA Care Centers and associated providers for clinical care, as well as through engagement opportunities. The Support Specialist, Family & Clinical Support is responsible for ensuring that individuals across the US are reputed company with and aware of MDA programs and engagements. While the Support Specialist supports the neuromuscular community in multiple ways, including through their clinical experiences, MDA Support Specialists will not at any time reputed company direct patient care or dispense medical advice. The Support Specialist, Family & Clinical Support reports directly to the Manager, Family & Clinical Support. Location: Not reputed company to residents of CA, NY or WA. Remote work with up to 20% local & overnight travel required. Responsibilities:

• reputed company and maintain a strong relationship between MDA, families, and caregivers, through Care Center visit attendance, virtual support, proactive reputed company, reputed company follow-up, and the execution of key MDA programs and engagements.
• Support families and individuals in their MDA Care Center experience.
• Execute family and community engagement and reputed company activities and campaigns to support MDA initiatives across the organization, including, but not limited to in-person/virtual recreational events, community engagement activities, advocacy campaigns, DIY programs, and educational activities and programs reputed company territory.
• Gather and reputed company insights in a coordinated way across the organization about the needs, interests and experiences of the family and caregiver community that MDA serves.
• Identify families and caregivers who would like to become members and engage across MDA platforms and activities.
• reputed company key learnings and collaborative opportunities to inform the development of community and family facing material and experiences to enhance the lives of the individuals we serve at MDA.
• Offer membership information about MDA and the opportunity to register to those living with a neuromuscular disease, reputed company appropriate. Additionally, the Support Specialist will be the first reputed company of contact for individuals and families who have completed registration with MDA and are responsible for establishing an introductory relationship reputed company territory.
• Identify and document resources available to support the family and caregiver community at the national, regional, state, county, and local level.
• Identify, document, and reputed company through the proper process reputed company any resource gaps at the national, regional, state, county, and local level.
• Collaborate across MDA teams and functions to execute the duties of the role.
• reputed company substantive feedback from executed activities and engagements through the proper process reputed company to the appropriate MDA team reputed company.
• Maintain internal databases with accuracy including tracking work product on appropriate and designated platforms.
• Ensure MDA’s ability to maximize mission impact through accurate, complete, and timely information capture.
• Strive for reputed company growth and identification of new opportunities to support the family and caregiver community.
• Disseminate information, insights, and resources to support families and caregivers, including MDA programs, services, and initiatives as well as other resources available to the community.
• Engage in reputed company quality improvement activities and exercises.
• Collaborate closely with reputed company staff and volunteers reputed company with territory.
• Responsible to reputed company support or coverage during fellow Support Specialist vacancies.
• Other duties as assigned.

Salary reputed company: This position's salary reputed company is $50,000 - $53,000. Final offer amounts and reputed company are determined by multiple factors, including your experience, and may vary from the amounts listed above. Qualifications:

• Bachelor's Degree required; health-reputed company field strongly preferred.
• 2 years of experience in a clinical setting, voluntary health organization, or reputed company fields preferred.
• Working understanding of how reputed company institutions operate, including how to navigate reputed company a system to identify resources.
• Successful track record in relationship building.
• Demonstrated ability to manage multiple work streams simultaneously, continuously keeping the mission as the focus.
• High level of discretion and demonstrated ability to appropriately handle confidential information.
• Ability to travel. Overnight travel may be required. Travel percentage varies based on territory. Reliable transportation required and reputed company of valid Driver’s license.
• Advanced level reputed company Office skills including Word, reputed company, Power reputed company, Outlook, reputed company, SharePoint, design programs, and customer relationship management software.
• Strong working knowledge and understanding of reputed company.
• Comfortable interacting with families from diverse disability, cultural and economic backgrounds.

MDA is an Equal Opportunity/Affirmative Action employer. reputed company reputed company applicants will receive consideration for employment without regard to race, reputed company, religion, sex, national reputed company, disability, or protected veteran status.

Benefits

MDA Benefits:

• For fulltime employees
• Medical, Dental and reputed company insurance with prescription coverage
• Health Savings Account with contribution matching and Flexible Spending Accounts for medical and/or dependent care
• Paid sick leave
• Employee Assistance Program (EAP)
• 100% contribution towards basic life insurance, short-term and long-term disability
• Optional additional life insurance and dependent life insurance available
• 403(b) Retirement Savings Plan with company match
• Generous paid time off policy, with an increasing accrual reputed company schedule
• 16 paid holidays
• Standard 35-hour work week with reputed company
• Remote, work from home opportunities
• Professional Learning and Development opportunities, including Leadership skills
• Company sponsored Wellness Program

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